This month started off with a bang again! I have been having a lot of dizzy spells lately. I also seem to lose my thoughts and daze off. Work also seems to be getting harder...especially towards the end of the day. It's hard because I am a perfectionist when it comes to working and it's hard not to feel like I am not doing a good job when I have to look up a procedure for something I have been going for six years!
Last Monday I felt exactly how I felt last Febuary when I was diagnosed. We spent 3 hours waiting in the ER before getting seen. Long story short they ended up admitting me. Since the hospital was full I was admitted to the observation unit! This place was worse than jail! There were no showers, you couldn't Order from the cafeteria (they had microwave meals), no tv, no phone and worse of all they had just stretchers as beds! I hope to god Baystate charged my insurance half price because this place was hell!! I was there for three days! Seriously, thank god for dry shampoo!
Long story short... MRI/MRA didn't shoe any progression on left (yay!!!), but right side is inconclusive. However, no new damage to brainwash noted (yay!). They also decided to do a test of my heart... Thankfully that organ looks great! After being at our "lovely" local hospital for three days I demanded that they call my neurosurgeon in Boston! I declined all tests Baystate was trying to give me after the heart test because basically I do not trust their expertise at all. My surgeon told them to release me and to follow up with him in Boston the next day.
Next day we went to Boston and my doctor reviewed everything. He thinks I may be having seizures...so now I need to have an EEG. He also wants me to have an angiogram. I am now officially traumatized to get one of these since I have heard everything from people getting blood clots to someone would rather have brain surgery than get an angiogram! Wow I can't wait! Sounds like a blast! Worse thing is I can't lift anything over 10 pounds for a week! Easier said than done when you have a child that requires lifting. What I don't like is my surgeon scheduled these appointments for April!
Not sure how I am going to be able to function the way I am feeling. I just don't feel like the surgery I had last year worked. I still feel dizzy, numb arms, head pain and disoriented. I need to be fully functional and I'm not. I have a child that requires extra care than most. I need to be able to be a good mom to my kids instead of exhausted and laying on the couch.
Oh and I guess Happy 1 Year Anniversary to me! Last year on the 13th was my surgery!
Never let a nurse with a creepy smile on their face take your blood....this is the result. Oh and this is just from one time.