So I have been weaning off the seizure meds and I was having some weird stuff happen. I was getting like "chills" feelings in my brain, dry mouth, headaches, dizziness, twitching and nausea...so I put myself back on the medicine. I was hoping to get some guidance from my neuro, but never heard back after the 2 messages I left today. This is some hard core seizure meds and I hate having to rely on myself and the internet on what I should do since my doctor isn't calling back......grrrrrr
On the plus side Colton's picture is in Parents magazine for the month of November. He was 1 of 10 kids chosen for the 2014 Parents magazine cover contest. I was really hoping he would get the cover because how often do you see a little boy in a wheelchair on the cover of a magazine? I guess a little part of me is hoping they call me and want to do a cover on him. Little do they know how interesting and kind if inspirational my family is?!
Anyways moyamoya sucks and I'm questioning if I was actually having seizures....here's to hoping I hear back from my doctor together and if I need to be on seizure medicine hopefully another one will do!