Well I had my angiogram yesterday in Boston. What a long day that was. While the angiogram itself was painless...the incision and sealing of the wound hurt like hell! I seriously felt like I was giving birth when they applied the sealant where the incision was. Afterwards in recovery I had some complications with the incision site bleeding, but it stopped after a few hours and bandage changes.
During the procedure I was awake and I could see the imaging. Pretty interesting stuff. Good news is my left side looks perfect! No obstructions and I have great flow. However, I remember him saying there are no increased ventricles on the right side and that the back of my brain is sufficing the lack of blood flow for the front. I didn't get a chance to ask what that means and my doctor never called my Dad to let him know. The nurses were all so sweet, but had no idea what moyamoya was. When the nurses transferred me to recovery they didn't even know what MM is and gave some incorrect definition. Thankfully I was with it and was able to school them on what it is.
So after a long long day I was released after they felt like my incision would no longer bleed just in time for rush hour! It took a long time to get out of Boston. Luckily, my nurse gave me a bucket because it came in good use! The ride home was not enjoyable at all.
Last night I got a pretty good amount of sleep. I'm still extremely sore and walking around like an old lady, but I'm not nauseous anymore. My plan for the weekend is rest and sleep. What's going to be even harder is I can't pick anything up for ten days over 10lbs. This is going to be extremely hard considering Colton requires a ton of lifting and Mark works 2nd shift. I told Kadyn she is going to have to be available to me and might not be able to do much the next ten days.
So my next plan of action is going back to Boston on Wednesday and having an EEG and appointment to meet my new neurologist. Hopefully I can get some answers. After that I am sending the report out to Stanford in California to see what they think. Second opinions are always a good idea.
I'm trying to take one thing at a time. Right now I just need to get over this hurdle and will come across the next. Just lucky I had this done on a Friday and have the weekend to rest. I hate using all my vacation days from work in a hospital or at doctor appointments (I want to be able to save some to have some actual fun too!)
So please send some good healing vibes my way! I think I'm going to need more good vibes! Xo